We went to see Dr. Klein today. My blood tests are better than normal. I am a white blood cell count making factory right now. Thanks Nueopogen! All that pain was worth it, I guess.
For those of you keeping score at home, here are my counts (the numbers on the right are the ‘normal’ range so you can see I’m above normal on some counts):
WBC 12.4 4.1 – 10.9
LYM 1.8 0.6 – 4.1
MID 0.9 0.0 – 1.8
GRAN 9.8 2.0 – 7.8
Today I feel like I played a game of beach volleyball insted of a game of tackle football. I had so much pain in my hips and lower back that I was up at 4 am. And if you’re ever up at 4 am on a Thursday morning and you want to know what’s on TV, the answer is: nothing. Don’t bother. Read a book. You can always buy a Shamwow later. Go back to bed.
The other thing I had to deal with today was telling Dr. Klein about how the UCLA Cancer Center completely screwed up everything in one week. On Monday, the nurse didn’t have me on her schedule for my shot and we had a 45 minute wait. Then she told me they might not even have the Neupogen because no one had ordered my medicine and they had to scramble to even get my prescription filled – even though it was Monday and the doctor had ordered it last Thursday. Not to mention the 2+ hours Jen had to spend on the phone to get the insurance approval and get the pharmacy to ship out the medicine after they had already done all their shipments for the day.
I have a favorite saying: If I did my job like you do your job, I wouldn’t have a job.
Sure it’s a bit snotty, but if I don’t do my job correctly then the work of over a hundred people and tens of thousands of dollars is gone forever. If a nurse (or nurses and receptionists) don’t do their job at the UCLA Cancer Center, then sick people get worse.
It’s one thing to have a bump in the road, an isolated problem. It is another thing to run into the brick wall of having no less than 3 people completely screw up and stress out a cancer patient. If the UCLA Cancer Center was a Jiffy Lube, I would not bring my car to them.
So, I am very close to switching my care to the UCLA Lymphoma Center in Westwood. Not because I don’t like my doctor (and isn’t he adorable in that little doctor outfit and glasses?) but because I was misdiagnosed for 6 months and I don’t trust any medical personnel right now.
Oh yeah, and my hair is starting to fall out. Sigh.
But I’m healthy and getting better every day.
At least I don’t have to take the bone-shaking Neupogen shots this week. Maybe I should be more like Dr. Klein and learn to relax a little bit?